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  1. Florencia Braga Menéndez
    Florencia Braga Menéndez says:

    Hoy, 6 de marzo, en todo el mundo conmemoramos el "Día Internacional de la Enfermedad de Stardardt".
    El Stargardt produde discapacidad y son muchos los niños y jóvenes con Stargardt que pierden mucho de su escolaridad y de su inclusión social.
    Hagamos difusión, que se escuche nuestra voz, que se conozca la enfermedad, que los pacientes accedan a sus diagnósticos, que la ciencia nos estudie, que los laboratorios desarrollen tratamientos, que los gobiernos apoyen la investigación.
    ¡Hagamos que se cumplan nuestros derechos!
    ¡Feliz 6 de marzo, Día Internacional del Stargardt!

    Florencia Braga Menéndez (whatsapp +54 911 2266 3101 EPOFArgentina@gmail.com)

    Today, March 6, around the world we commemorate the "International Day of of Stardardt Disease".
    The Stargardt produces disability and many children and young people with Stargardt lose a lot of their schooling and their social inclusion.
    Let's spread Stargardt, let's do awareness, let's our voice be heard, let's the disease be known, let's patients access their diagnoses, that science study us, that laboratories develop treatments, that governments support research.
    Let's make our rights fulfilled!
    Happy March 6, International Stargardt Day!

    Florencia Braga Menéndez (whatsapp +54 911 2266 3101 EPOFArgentina@gmail.com

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  2. Butch F
    Butch F says:

    I have m.d. and I think you are full of crap.  I went to Shawnee Ks. to a stem cell Dr. who thought he could cure me with my on stem cells.. I asked him if he had ever cured anyone of m. d. and he said that one man told him that his m. d. got better even though that wasn't what he was being treated for .  They took blood, fat from my belly and bone marrow from my hip bone,  mixed them together and reintroduced them to my body intravenously and told me that I should be seeing 2020 in about two weeks and worse case would be 4 months.  nearly a year later my vision has deuterated even more than I thank it would have if I had just stayed home.   They did , however, relieve me of $7500 and all they could squeeze out of my insurance.

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